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Information Governance Manager for Research and Compliance

  • Job
    Full-time
    Senior Level
  • Legal
    Research & Development
  • London

AI generated summary

  • You must have IG delivery experience in care or research, strong compliance knowledge, and the ability to provide expert guidance and training. Teamwork and leadership skills are essential.
  • You will manage IG operations for research, provide expert advice, ensure compliance, conduct assessments, develop training, handle incidents, and support governance groups and audits.

Requirements

  • Previous Applicants Need Not Apply
  • The successful candidate will be a team player with a track record of best practice IG delivery in a care provider or research environment, and will be able to demonstrate how good IG compliance supports care now and in the future
  • Coordinate and manage IG operations in support of research, keeping the Head of IG, the Director for Research, and the Chief Operating Officer for INSIGHT apprised of outcomes and escalating issues as appropriate
  • Provide expert and specialist IG advice and expertise on health research and related data access initiatives, developing high-quality, user-friendly and accurate guidance in a range of formats
  • Provide expertise and advice on research management and proposals (grant applications), including research ethics and data sharing/licensing and/or service agreements involving personal data, liaising with the Head of IG and Moorfields General Counsel where appropriate
  • Manage information asset accession and information security reviews relating to research proposals, including Information risk assessments, data protection impact assessments for new and existing research systems/processes/projects involving processing of data, ensuring that proposals are compliant and in the required format for approval
  • Ensure research related policies, procedures and guidelines are compliant with data protection legislation and are implemented effectively and efficiently across the research function
  • Assess and report on the discharge of procedures and processes to identify gaps in current practice, and where required make recommendations
  • Work with the managers and principal investigators to ensure the maintenance of their entries to the information asset register
  • Develop and provide tailored IG training and guidance for research colleagues
  • Investigate and report on IG complaints and incidents in line with Trust policy as required, particularly where they are linked to research
  • Coordinate, develop and review appropriate information-sharing protocols that provide clarity of purpose and enable streamlining of information disclosure routes
  • Ensure the Trust is compliant with legislative requirement for data sharing or licensing
  • Support research leadership with the production of IG related data and reports, including for Moorfields Research Management Committee, Research Governance Committee, and for HDRUK purposes
  • Provide input to the Trust’s IG and corporate risk registers and reporting requirements
  • Manage the NHS Data Security and Protection Toolkit (DSPT) activity, including the collation and provision of evidence, and coordination of returns
  • Assist with DPA requests relating to research (including requests that overlap between the DPA and the FoIA) and respond to DPA complaints where necessary
  • To assist the Head of IG with IG Departmental work planning
  • There is an expectation that the postholder may be responsible for contractors/consultants hired to undertake a discrete piece of service work, and/or agency temporary staff
  • Monitor and support internal and management audit of research processes to identify IG gaps or weaknesses in current practices or systems
  • Ensure all recommendations are implemented to deliver an improvement in the research function delivery
  • Provide leadership for, and the IG element of research governance groups, ensuring terms of references are up to date and aligned with other governance structures at the Trust
  • Manage, support and develop the Information Compliance Officer
  • Attend external Information Governance and Research Forums to develop strong and productive relationships with Information Governance leads in other NHS organisations and with wider stakeholders and to help influence the national policy agenda on Information Governance

Responsibilities

  • Coordinate and manage IG operations in support of research, keeping the Head of IG, the Director for Research, and the Chief Operating Officer for INSIGHT apprised of outcomes and escalating issues as appropriate.
  • Provide expert and specialist IG advice and expertise on health research and related data access initiatives, developing high-quality, user-friendly and accurate guidance in a range of formats.
  • Provide expertise and advice on research management and proposals (grant applications), including research ethics and data sharing/licensing and/or service agreements involving personal data, liaising with the Head of IG and Moorfields General Counsel where appropriate.
  • Manage information asset accession and information security reviews relating to research proposals, including Information risk assessments, data protection impact assessments for new and existing research systems/processes/projects involving processing of data, ensuring that proposals are compliant and in the required format for approval.
  • Ensure research related policies, procedures and guidelines are compliant with data protection legislation and are implemented effectively and efficiently across the research function.
  • Assess and report on the discharge of procedures and processes to identify gaps in current practice, and where required make recommendations.
  • Work with the managers and principal investigators to ensure the maintenance of their entries to the information asset register.
  • Develop and provide tailored IG training and guidance for research colleagues.
  • Investigate and report on IG complaints and incidents in line with Trust policy as required, particularly where they are linked to research.
  • Coordinate, develop and review appropriate information-sharing protocols that provide clarity of purpose and enable streamlining of information disclosure routes.
  • Ensure the Trust is compliant with legislative requirements for data sharing or licensing.
  • Support research leadership with the production of IG related data and reports, including for Moorfields Research Management Committee, Research Governance Committee, and for HDRUK purposes.
  • Provide input to the Trust’s IG and corporate risk registers and reporting requirements.
  • Manage the NHS Data Security and Protection Toolkit (DSPT) activity, including the collation and provision of evidence, and coordination of returns.
  • Assist with DPA requests relating to research (including requests that overlap between the DPA and the FoIA) and respond to DPA complaints where necessary.
  • To assist the Head of IG with IG Departmental work planning. This includes planning and coordinating specialist project advice and technical support, planning and coordinating specialist advice and guidance.
  • There is an expectation that the postholder may be responsible for contractors/consultants hired to undertake a discrete piece of service work, and/or agency temporary staff.
  • Monitor and support internal and management audit of research processes to identify IG gaps or weaknesses in current practices or systems.
  • Ensure all recommendations are implemented to deliver an improvement in the research function delivery.
  • Provide leadership for, and the IG element of research governance groups, ensuring terms of references are up to date and aligned with other governance structures at the Trust.
  • Manage, support and develop the Information Compliance Officer.
  • Attend external Information Governance and Research Forums to develop strong and productive relationships with Information Governance leads in other NHS organisations and with wider stakeholders and to help influence the national policy agenda on Information Governance.

FAQs

What is the main purpose of the Information Governance Manager for Research and Compliance position?

The main purpose of this position is to coordinate and manage information governance operations related to research, ensuring compliance with data protection legislation and supporting the Trust's ambition to efficiently use data for clinical transformation.

What qualifications or experience are required for this role?

The successful candidate should have a track record of best practice information governance delivery in a care provider or research environment and the ability to demonstrate how good information governance compliance supports care now and in the future.

What kind of support is provided for professional development?

The Trust offers learning and development opportunities, full support and training to develop your skills, and the chance to grow within the role.

Where will the IG team be based?

The IG team is currently based at City Road but will move to the St Pancras site in the future.

What benefits are offered to employees of Moorfields?

Employees can expect a salary including a High-Cost Area Supplement, the opportunity to join the NHS Pension Scheme, free 24/7 independent counselling service, attractive benefits and discounts, free Pilates classes, and a range of other perks.

Is there an expectation of working with external stakeholders?

Yes, the role involves working with partners in the UK and beyond and attending external Information Governance and Research Forums to build relationships and influence national policy agendas.

Will the role involve managing others?

Yes, the post holder will manage, support, and develop the Information Compliance Officer and may also be responsible for contractors or temporary agency staff.

How does the Trust ensure compliance with data protection legislation?

The Information Governance Manager will ensure that research-related policies, procedures, and guidelines comply with data protection legislation and are implemented effectively across the research function.

What types of reports will the Information Governance Manager be responsible for producing?

The manager will support research leadership with the production of IG-related data and reports for various committees, including the Moorfields Research Management Committee and Research Governance Committee.

How does this position contribute to the Trust’s strategic goals?

This position supports colleagues at all levels to facilitate change and delivery of clinical transformation through efficient and effective use of data, aligning with the Trust’s strategic ambitions.

Science & Healthcare
Industry
1001-5000
Employees
1804
Founded Year

Mission & Purpose

Moorfields Eye Hospital NHS Foundation Trust specializes in ophthalmic care, offering expert treatment for a wide range of eye conditions. Their mission is to provide exceptional, personalized eye care and to advance research and education in ophthalmology. Their purpose is to enhance vision and eye health through state-of-the-art medical practices, innovative research, and dedicated patient support, ensuring the highest standards of care and outcomes for their patients.